Members
| APEC LSIF RDN Role | APEC Economy | Sector | Full Name | Title | Affiliation |
| Chair | Australia | Academia | Prof. Matthew BELLGARD | Director, eResearch | Queensland University of Technology |
| Co-Chair - Academia | China | Academia | Prof. Zheng Xiaoying | Dean | APEC Health Science Academy, Peking University |
| Co-Chair - Government | Thailand | Government | Dr. Nares DAMRONGCHAI | CEO | Thailand Center of Excellence for Life Sciences |
| Co-Chair - Industry | Industry | Industry | Mr. Cameron MILLINER | Head of Public Affairs and Patient Advocacy, APAC | Shire |
| Member | Australia | Government | Ms. Susan CADMAN | International Strategies Branch | Australia Department of Health |
| Member | Australia | Government | Mr. Luke ELIAS | Director, Business Analytics and Performance | Western Sydney Local Health District, New South Wales Government |
| Member | Chile | Government | Dr. Camila QUIRLAND LAZO | Head of Health Technology Assessment Unit, Pharmaceutical Services Management Office | Oncology Institute, Arturo López Perez Foundation |
| Member | Chile | Government | Dr. Dino JOSÉ FRANCISCO SEPÚLVEDA VIVEROS | Head of the Department, Department of Evaluation of Health Technologies and Health Based on Evidence, Division of Health Planning | Chile Ministry of Health |
| Member | Chile | Government | Dr. Pablo ANDRÉS DÍAZ MOLINA | Studies and Project Evaluation, Department of Scientific Affairs | Institute of Public Health of Chile (ISP) |
| Member | China | Academia | Dr. Jie Ding | Professor, Pediatric Department | Peking University First Hospital |
| Member | China | Academia | Prof. Zhang Lei | Deputy Secretary in General | APEC Health Science Academy, Peking University |
| Member | China | Academia | Dr. Yanan LUO | Dean Assistant and Research Fellow | APEC Health Science Academy, Peking University |
| Member | China | Government | Dr. Gong Mengchun | Executive Director | National Rare Disease Registry System of China |
| Member | Chinese Taipei | Academia | Dr. Yin-Hsiu CHIEN | Clinical Assistant Professor and Attending Physician, Department of Medical Genetics, Department of Pediatrics, | National Taiwan University Hospital |
| Member | Chinese Taipei | Government | Dr. Hsien-Yi LIN | Senior Reviewer,Division of Medicinal Products | Taiwan Food and Drug Administration |
| Member | Indonesia | Government | Dr. Damayanti Rusli Sjarif | Indonesia Ministry of Health | |
| Member | Indonesia | Government | Dr. TENGKU DJUMALA SARI | Medical Doctor, Directorate of Referral Health Service | Indonesia Ministry of Health |
| Member | Indonesia | Government | Ms. Wulan Anom Sari | Bureau of International Cooperation, | Indonesia Ministry of Health |
| Member | Industry | Industry | Mr. Matthew LLOYD-WATKINS | Senior Director, International Public Affairs | Pfizer |
| Member | Industry | Industry | Mr. David KWASHA | JAPAC Regional Head and Managing Director | Alexion |
| Member | Industry | Industry | Mr. Franck PERRAUDIN | Head of Public Affairs, ASIA & JPAC | Sanofi |
| Member | Industry | Industry | Mr. Matthew HAROLD | International Public Affairs, Rare Disease | Pfizer |
| Member | Industry | Industry | Ms. Poh Lin LIM | Market Access Director, Japan-Asia Pacific | Sanofi |
| Member | Korea, Republic of | Academia | Dr. Tai Ju Hwang | President | Korea Hemophilia Foundation Clinic |
| Member | Korea, Republic of | Academia | Dr. Yoon Tae Jeen | Professor of Medicine | Korea University Anam Hospital |
| Member | Korea, Republic of | Academia | Dr. Geu Ru Hong | Professor | Severance Hospital |
| Member | Korea, Republic of | Academia | Dr. Han Wook Yoo | Professor | Asan Medical Center |
| Member | Korea, Republic of | Government | Dr. Joo-Yeon Hwang | Division of Rare Disease, Center for Biomedical Science, Korea Centers for Disease Control & Prevention | |
| Member | Korea, Republic of | Government | Ms. Mirinea KIM | Researcher | APEC Harmonization Center |
| Member | Korea, Republic of | Government | Dr. Yun Jin Ahn | Division Head | Division of Rare Disease, Center for Biomedical Science, Korea Centers for Disease Control & Prevention |
| Member | LSIF | LSIF | Mr. Eric OBSCHERNING | Advisor | APEC LSIF Secretariat |
| Member | LSIF | LSIF | Mr. Michael SCHMITZ | Advisor | APEC LSIF Secretariat |
| Member | Malaysia | Government | Ms. BIBI FARIDHA MOHD SALLEH | Senior Principal Assistant Director (Pharmacist) | Pharmaceutical Services Programme, Ministry of Health, Malaysia |
| Member | Malaysia | Government | Dr. LEONG HUEY YIN | Clinical Geneticist | Genetics Department, Kuala Lumpur Hospital, Ministry of Health, Malaysia |
| Member | Malaysia | Government | Dr. JAFANITA BINTI JAMALUDIN | Senior Principle Assistant Director | Obstetric Services & Gynaecology & Paediatric Unit, Medical Development Division, Ministry of Health, Malaysia |
| Member | Malaysia | Government | Ms. Karen ANG | Policy and International Division | Ministry of Health |
| Member | Mexico | Government | Mr. Juan Ramon Lara Zenteno | Focal Point for Regulatory Sciences | COFEPRIS |
| Member | Mexico | Government | Mr. Lahouari Belgharbi | Director-General, Center of Excellence for Regulatory Science | COFEPRIS |
| Member | Mexico | Government | Dr. MA. GUADALUPE ESPITIA HERNÁNDEZ | Physician | Institute for Social Security and Services for State Workers |
| Member | Mexico | Government | Dr. Odette Del CARMEN DIAZ AVENDAÑO | Physician | Institute for Social Security and Services for State Workers |
| Member | Mexico | Government | Ms. Marevna García Arreola | Ministry of Health | |
| Member | Peru | Government | Dr. Lucy Nancy Olivares Marcos | Director General, General Directorate of Strategic Public Health Interventions | Ministry of Health |
| Member | Peru | Government | Dr. Nidia Chinchihualpa Montes | National Health Strategy for the Prevention and Control of Non-Communicable Diseases | Ministry of Health |
| Member | Peru | Government | Dr. Rocio Cathia Casildo Canedo | General Office for International Cooperation and Affairs, Ministry of Health | |
| Member | Philippines | Academia | Dr. EVA MARIA CRUZ CUTIONGCO-DE LA PAZ | Vice Chancellor for Research and Executive Director | National Institutes of Health, University of the Philippines - Manila |
| Member | Thailand | Academia | Dr. Duangrudee Wattanasirichaigoon | Professor of Pediatrics and Medical Genetics, Chief of the Division of Medical Genetics, Department of Pediatrics, Faculty of Medicine | Ramathibodi Hospital, Mahidol University, Thailand |
| Member | Thailand | Academia | Dr. JAKRIS EU-AHSUNTHORNWATTANA | Lecturer | Department of Community Medicine, Ramathibodi Hospital, Mahidol University |
| Member | Thailand | Academia | Dr. Chulaluck Kuptanon | Queen Sirikit National Institute of Child Health, Department of Medical Services | Thailand Ministry of Public Health |
| Member | Thailand | Government | Ms. Mayuree WINOTHAI | Bureau of International Health, Office of the Permanent Secretary, Ministry of Public Health | |
| Member | United States | Government | Ms. Elizabeth YUAN | Fogarty International Center | U.S. National Institutes of Health |
| Member | United States | Government | Ms. Erika ELVANDER | Office of Global Affairs | U.S. Department of Health and Human Services |
| Member | United States | Government | Dr. Stephen SEIDEL | Office of Science Policy, National Center for Advancing Translational Sciences | U.S. National Institutes of Health |
| Member | Viet Nam | Academia | Dr. Vu Chi Dung | Head of Department of Medical Genetics, Metabolism and Endocrinology | National Pediatric Hospital |
| Member | Viet Nam | Government | Dr. DAO NGUYEN MINH | Vice Head, Quality Management Bureau, Medical Services Administration | Viet Nam Ministry of Health |
| Member | Viet Nam | Government | Dr. NGUYEN Thi Mai | Director of Hemophilia Centre | National Institute of Hematology and Blood Transfusion |
| Member | Viet Nam | Government | Dr. NGUYEN Trieu Van | International Cooperation Department | National Institute of Hematology and Blood Transfusion |
| Member | Viet Nam | Government | Ms. Trinh Thi Ngoc Linh | International Cooperation Department | Viet Nam Ministry of Health |
Partners
| Ajou University Hospital |
| Asan Medical Center |
| Bureau of Drug Control, Thailand |
| Canadian Organization for Rare Disorders |
| Center for Research on Health and Social Care Management, Bocconi University |
| China Center for Food and Drug International Exchange |
| China Health Insurance Research Association |
| Chinese Organization for Rare Disorders |
| Department of Zhejiang Human Resources and Social Security Department |
| Division of International Organizations, China State Food and Drug Administration |
| Eulji University Hospital |
| Excellence Center for Medical Genomics |
| Fudan University School of Public Health |
| Hemophilia Home of China |
| Integrative Computation BioScience Center |
| Korea Hemophilia Foundation Clinic |
| Korean Organisation for Rare Diseases |
| Kyunghee University Hospital at Gangdong |
| Kyungpook National University Hospital |
| Medical Insurance Division, Chinese Academy of Labour and Social Security |
| National Development Institute of Korean Medicine |
| National Health Development Research Center |
| Organization for Rare Disease India |
| Peking Union Medical College Hospital |
| Samsung Medical Center |
| Seoul National University Hospital |
| Seoul National University, Children's Hospital |
| Shanghai Rare Disease Foundation |
| Taiwan Foundation for Rare Disorders |
| Taiwan Human Genetics Society |
|
Ulsan University Hospital |